Tag Archive for: Summit Eldercare

Lowell couple take on spinal cord injury together

Read the full article here.

Tracy Leedberg’s story is rife with sadness, triumph, hope and perseverance.

And when Leedberg reconnected with her high school friend after more than two decades, her life came full circle. James Radcliffe found his way back to Leedberg and, in 2018, the two settled comfortably in Tyngsboro. But one year later, a devastating event left the couple in grief and turmoil.

“In July 2019, Jimmy dove into the pool and couldn’t move,” Leedberg said. “I thought he was just messing around at first.”

But he was not messing around. Radcliffe, 56, had broken his neck. The traumatic C5 injury left him paralyzed from the waist down.

Leedberg became overwhelmed by the new responsibilities in her life. She had no idea how to provide care for someone in Radcliffe’s condition, nor where to find specialized care. Moreover, she felt sadness that her once-strong construction worker partner had been rendered so immobile and helpless. It affected the couple in every aspect of life — mentally, spiritually, romantically and especially financially.

“I had to quit my job because Jimmy needed me at home,” she said. “I became a full-time caregiver.”

She did not object to this new role, but acquiesced to the fact that she needed assistance.

Hope arrived in the subtlest of gestures.

“One day, a few months after my final surgery, I was laying in bed and tried to wiggle my toe,” Radcliffe explained. “And it moved.”

This flicker of hope led him to a physical rehab center in Salem, N.H. He began making slow progress but after the months-long regimen, was released back to home care. At home, he hoped to continue his forward momentum toward recovery with the help of visiting professionals. Then came COVID-19. The home aid they had waited for was curtailed due to travel restrictions and health care protocols.

He again fell into despair. All the physical gains he had made plateaued, then began regressing. His hope and confidence atrophied as well. Leedberg’s health also took a turn as she suffered a stress-related heart attack.

“When I couldn’t care for Jimmy anymore, I became despondent,” she said. “The doctors wanted to put him into a nursing home facility. I didn’t want that and he certainly did not. I didn’t know what to do.”

As the mother of three daughters, now adults, Leedberg has experience in caregiving, but she also knows her limits and they had been reached. Financially, physically and emotionally depleted, the couple did not know where to turn.

Like most things in life, great challenges are overcome by great teamwork. And, like the cavalry, a team appeared. In a happy accident while Googling for something else, Leedberg found out about a program called Summit ElderCare. They said the Fallon Health-run program at 1081 Varnum Ave. in Lowell was the Holy Grail of treatment they had been so desperately seeking.

Fallon, a Worcester-based corporation, has five Summit ElderCare facilities throughout Massachusetts, including in Leominster. For Leedberg and Radcliffe, having one so close to home is an added blessing. The outpatient center offers comprehensive care including physical therapy, occupational therapy, regular medical exams, transportation, even at-home visits as well a social atmosphere conducive to the maintenance of mental health.

Summit ElderCare is a Program of All-inclusive Care for the Elderly, or PACE, and is exactly what Radcliffe needed.

“I started here in March and have made so much progress since then,” he said.

His hands still show signs of strength gained as a construction worker skilled in sheet-metal work. His smile comes easier now, a result of hope and progress.

“When I first got hurt, doctors said I may never walk again. That became a challenge that I intended to face,” Radcliffe said. “Since starting at Summit, I have made steady progress in my therapy.”

With each success comes more confidence.

“And with more confidence, I get more motivated,” he said.

Radcliffe enjoys the five-days-per-week visits to the center, enjoying the activities but always focused on the objective. His physical therapist, Michael Fitzgerald, is part coach and part motivator. The two have become friends, discussing football between exercises.

“At first I needed help just to sit up in bed,” Radcliffe said. “Then I made it to the chair. Over the months I am finally doing some assisted walking.”

On Wednesday, the largest step was taken. Supported only by a belt that Fitzgerald grasped to help stabilize him, Radcliffe walked across the training room floor, much to the surprise and delight of Leedberg.

The timing of this momentous step is also quite serendipitous. September is National Spinal Cord Injury Awareness Month and Radcliffe ushered that in with his proud yet labored gait.

“People don’t understand how complicated SCI care is,” Leedberg said. There are several ancillary health effects including urinary tract infections, self-confidence damage and loss of hope. “He now has hope.”

“She has been a strong advocate for me,” Radcliffe said of Leedberg. “But she is also an advocate for PACE at Summit.”

Leedberg showed appreciation of the organization by being a featured speaker at the annual MassPACE Association Annual Conference in May. She also presented her extensive research paper, “Meeting the Needs of Caregivers to Decrease Burnout.”

Dinah Olanoff, a senior business consultant for Fallon’s PACE strategy, explained how the program works.

“We try to find support that is uniquely directed for each participant. We set up a model of care for every individual,” she said, including Radcliffe.

“He was very depressed when I first met him. Now he is living his best life,” Olanoff said.

But that “best life” will not be achieved by his standards until “I can walk out of here on my own,” Radcliffe said. “I plan to get back to working.”

Op-ed: Veterans deserve the best health care has to offer

This article was originally posted on the MetroWest Daily News. Read the full article here.

No one has sacrificed more for our country than veterans. Yet for years, Veterans Administration Medical Centers have been plagued by challenges. COVID-19 and the Afghan war — our longest ever — have put new strains on the VA. Policymakers in Washington are working hard to keep pace with demand for veterans services by building new facilities.

To be sure, adding new infrastructure is a welcome and important part of the strategy to improve health care services to veterans. Another is employing innovative care models that have been proven to work in the private health care market and can be married to the existing VA system.

One of these care models is the Program of All-inclusive Care for the Elderly (PACE), which is offered throughout Massachusetts under several different names, including Fallon Health’s Summit ElderCare.

PACE programs use an interdisciplinary team approach to keep older Americans with complex, chronic conditions safe and healthy while living independently in their own homes. PACE enrollees typically receive care at home and in a PACE center. Such care can include primary care, therapies, meals, socialization, medication management, transportation and any other care or service needed to maintain the highest level of functioning.

Ninety-five percent of enrollees are able to live in the community, outside a nursing home, with the support of PACE. And studies show that PACE and programs like it result in improved outcomes.

A report by the U.S. Department of Health and Human Services found that PACE members “are significantly less likely to be hospitalized, to visit the ED (emergency department) or be institutionalized.”

In Massachusetts, a study of a similar care model, Senior Care Options (SCO), found a “beneficial impact on enrollees in both NF (nursing facility) residency and risk of death.”

During the pandemic, PACE programs demonstrated the strength of their person-centered model of care by keeping enrollees safe at home. The rates of COVID-19 infection and death among PACE enrollees were one-third of those incurred by nursing home residents.

Congress is working on legislation that would marry PACE programs and VA Medical Centers. It is called the “Elizabeth Dole Home and Community Based Services for Veterans and Caregivers Act,” named for the former senator whose late husband, Bob Dole, was also a U.S. senator and a wounded hero in World War II.

Specifically, it would establish partnerships between PACE and VA Medical Centers that are within the service area of a PACE program.

“Age, combined with their unique health needs, makes many elderly veterans especially vulnerable to going into nursing homes and institutional care,” said Congresswoman Julia Brownley, Chair of the House Veterans’ Affairs Subcommittee on Health, who introduced the Dole bill. “Our nation’s veterans deserve the right to age comfortably and with dignity in their homes. The research is clear: providing health services and assistance in home settings improves health outcomes and delays, if not prevents, nursing home placement for people with disabilities and the elderly. However, VA’s current programs need to be improved and expanded to ensure that all veterans have access to these types of services.”

Given the hardships they’ve endured for the rest of the country, veterans deserve access to the most innovative and successful health care strategies we have. We urge Congress to pass the Dole bill.